Unfortunately he does have EB. He and mom are doing just fine right now. This will be a short quick update, but there will be much more to come.
We knew going in that we had this chance and were prepared as we could be. However, what made it more devastating initially was the fact that he had a few large skin tears and since they didn't clean him (our request) it made it appear much worse than it was. Also he had trouble getting enough oxygen at firt. We were forced to make a quick decision to keep him here vs. sending him to a neonatal care facility.
Thankfully, with the extra 2 1/2 weeks, his lungs are good and he caught up after a few hours. Also, after we cleaned up the birth mess we realized that other than the few tears he is doing just fine.
While we are expecting the same as with Anthony, we are hoping and praying for better results. Our pioneering Tony has given us volumes of knowledge to care for James and hopefully prevent much of what he went through.
Mom and dad had their 3hrs of rest and had to feed him this morning :) Our goal is to bring him home tomorrow and have as much normalcy that is possible with a new born.
Thanks for all your prayers. Please prayer for wisdom for us and those that are caring for James. That his wounds would heal and for his feeding.
We are praising God for our gift and know that he will guide us through wherever this takes us. While mourning for what He has and the future that is in store for us.
Oh, and he was born about 11 pm last night, 6 lbs 5.5 oz (give or take some aquaphor) and about 20".
Stu, Tashia, Abby and Slick
(since mom won't let dad call him Jim or Jimmy, he had to think hard to get his first nickname)